How I got my diagnosis: stories and tips

A review of 15 studies found people see three clinicians on average and wait 3 to 9 years for the correct diagnosis. Many are first treated by a dentist or ENT specialist. Tell us your story: who did you see, what helped the doctor understand, how long did it take. Your experience will shorten the road for newcomers. Source: https://pmc.ncbi.nlm.nih.gov/articles/PMC4166399/